Tag Archives: health

Death by Waiting

Thanks to those who have written words of encouragement and kept me in your thoughts and prayers. Yes, even as an atheist I can appreciate prayers – if you care enough to intercede with your god for me, I take it as a sign of affection, and affection never hurts. Besides, I have so many different denominations praying for me that one of them’s bound to take, right? <wry grin>

I also had a bunch of phone calls yesterday wanting to know the news. Unfortunately, there hasn’t been any yet. Some people have said this may be a good sign: if there was bad news, the hospital would be in more of a hurry to inform me about it!

All this helps, but basically I’m going through hell. I cope better with unhappy certainties – god knows I’ve had enough practice at that – than I deal with any kind of uncertainty. I’ve slept very poorly for a week (staying at a noisy campground at the beach last weekend didn’t help), and there aren’t enough distractions in the world to keep my mind off this. (Though Ross is certainly providing a full repertoire of teenage moments – I begin to suspect she’s trying to make me glad that she’s going away to boarding school!)

The fear and anxiety I’m experiencing are very normal – even the American Cancer Society says so. I now know that a number of my friends and relatives have already been here and done this. So why didn’t I hear about it before? It seems that people have different reactions: some keep it to themselves; some share, but only with their closest. And I suspect that, when the results come back negative, many feel a bit foolish for having put themselves through so much misery: “What right do I have to complain? I’m one of the lucky ones: turns out I don’t have cancer.” And they put it out of their minds until the next time.

Make no mistake, there will be a next time – after all, I have difficult breasts. And I have heard from and about other women who have gone through this multiple times for various reasons. There’s got to be some way to make this waiting period less horrible for all of us.

update at 10:30 am: Finally got hold of the doctor (“But she called you yesterday!” – oh?) – all is well, nothing to worry about.

Biopsy: Digging to China Through My Breast

Well, that was extremely unpleasant.

First there was the wait, from Thursday to Tuesday, going through stages from: “I certainly don’t have cancer, they’re just being careful” to: “Ohmigod I’m going to die!”

I spent a lot of the weekend working hard in the garden – a very good distraction. Saturday afternoon Enrico and I went to the bookstore to look for birthday presents for his mother. As usual, I gravitated towards the comics (aka graphic novels). My eye was caught by Il Cancro Mi Ha Resa Piu’ Frivola (originally titled Cancer Made Me a Shallower Person: A Memoir in Comics), by Miriam Engelberg. In other circumstances I probably would have liked, if not exactly enjoyed, this book. The first few pages described exactly what I was going through. I flipped to the About the Author blurb in the back. She died last year. No, don’t want to read that now.

On another shelf, my eye lit upon: “The Big Book of Breasts” (a book of photographs – the book, and presumably the breasts inside, was indeed big). Then Non C’e’ Paradiso Senza Le Tette (“There’s No Heaven Without Tits” – about a Colombian girl who wants breast implants so she can be a mistress to drug dealers. ?!?). I fled the store.

Sunday night we went out to dinner at Lanterna Verde, as an early celebration of Ross’ birthday – we’re running out of weekends with her! I was feeling pretty good Sunday. Friends had sent in encouraging information: only one test in one hundred turns up positive. Another friend backed this up, and she’s got a lot more to worry about as there is a strong history of cancer in her family; I have no such history. As yet. My mother is having a (probably ovarian) cyst removed next Monday, and won’t know whether it’s benign until it’s out.

Monday I went to the office, also a good distraction. Had an interesting lunch that day, too.

Tuesday morning I got up early and worked on Sun stuff. Then it was time to go to the hospital. Ross came along for moral support.

The Radiology department was nearly deserted, and we spent only ten minutes in the waiting area, then another five or so inside the changing room, where I was increasingly uneasy at all the preparations I could hear. This was sounding less and less like a quick in-and-out with a fine needle.

Sure enough, the mammogram machine was set up with a whole different set of torture devices. This time there were two clear plastic platforms, each with a rectangular hole, one above and one below. My breast was carefully arranged and squashed (not quite as painful as last time – my period has come, so the pre-menstrual tenderness is over – but not comfortable, either), and an x-ray taken for positioning. The doctor entered x, y, and z coordinates on the machine, and attached to it two pieces of metal which she explained were needle guides. (I think this is called in English a stereotactic biopsy.)

The z coordinate – depth – was set to 14.8 millimeters. They’d be drilling one and a half centimeters into my breast. I guess the gap under the plastic platform my breast was resting on was in case they came out the other side!

The nurse swabbed iodine on the part of my breast exposed by the upper rectangular opening. The doctor injected a local anesthetic, which burned as she worked the needle around to cover all the areas she expected to work in. Ow, ow, ow. The technician was again unsympathetic: “Does it really hurt that much?” You should have heard me when I was in labor, lady. I am not heroic about pain, and I don’t care who knows it.

The doctor and nurse were kinder. They kept asking questions to distract me: “What kind of name is Deirdré Straughan? I’ve never heard it before.” I was relieved to chatter away, though even I was only half-aware of what I was saying. They touched me as they bustled back and forth, gently on the shoulder, as if to acknowledge that I was a scared human being they were doing things to, not just a lump of meat. That was reassuring and comforting.

My right arm was stretched around the machine as before, and I was panting with discomfort and stress. Out of the corner of my eye I saw a big, thick needle coming at me, and promptly squeezed my eyes shut. I didn’t feel the needle going in, or at least it wasn’t painful. But the loud chunk! as it bit off something inside was startling. That needle was withdrawn and another one put in. This time I was braced for the sound, but still didn’t like it. “It’s just the noise that bothers you, right?” asked the doctor.

She took x-rays again, I think while the needle was still in place (I didn’t look). Then I had to wait, maintaining my position, while those were developed. I leaned my head against the machine. The nurse pressed hard on the wound with a wad of cotton held in medical forceps, I suppose to stop it bleeding, so I couldn’t see how big the hole actually was. I’d seen a scalpel at some point, don’t know whether they used it.

After examining the x-rays, the doctor evidently decided she hadn’t quite got what she wanted. One more needle, one more chunk bitten out of my tissues. Then, finally, it was over. My breast, with a round red hole in it, was released from the machine. The nurse helped me over to an examining table nearby (“Don’t bump your head on the machine”), cleaned off the iodine, closed the wound with three little strips of tape, and put a big bandage on top of that. After I had got dressed again, she gave me an ice pack to place between my bra and my t-shirt. I probably looked pretty funny walking around Lecco afterwards, clutching this big lump to my chest.

The doctor took my cell number and said she would call me as soon as she had results, probably next Monday. In the meantime we’re all going to Roseto to celebrate my mother-in-law’s 80th birthday. We’re not going to tell herr about this.

I was exhausted last night. Anesthetic and kindness aside, what I went through yesterday would in any other context be called torture. In the aftermath, I feel bruised inside, both physically and emotionally.

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Difficult Breasts

I had my first mammogram about ten years ago, around age 35. I was surprised when the gynecologist I was seeing suggested it; I thought routine mammogram screening didn’t start til age 40 or 45. He said: Lei ha un seno difficile – “You have difficult breasts.” By which he meant that they were naturally lumpy (fibrocystic), making it hard to tell by palpation whether there was anything suspicious in there or not.

So I went for my first mammogram at one of Milan’s big hospitals. I stood a torso nudo (stripped to the waist), staring round-eyed at the machine. I’d been told mammograms were (at best) uncomfortable, and I didn’t know what to expect.

The technician, seeing my expression, asked: E’ la prima volta? (“Is it your first time?”). I nodded. She kept up a steady stream of chatter, to which I replied in monosyllables until she finally burst out: “I’m trying to distract you!”

I appreciated the effort, but…

So, for those who have yet to experience it (or never will), here’s how a mammogram goes:

You stand in front of the machine and the technician raises the platform (about a foot square) to a height just slightly uncomfortable to fit under your breast. You arrange your arm around the corner of the platform, and hold onto a handle at the back of the machine – that keeps your arm stretched out of the way. If the corner digs into your armpit, you know you’re doing it right.

The technician lifts the breast onto the platform and pulls it out to an extent you would not have imagined your breast could stretch. Then she lowers a flat, clear plastic cover that squashes it down to a minimum possible thickness (in my case, about two centimeters). This is indeed uncomfortable, verging on painful, depending on how sensitive your breasts are (which, in my case, depends partly on the time of month – never schedule a mammogram just before your period is due).

The technician retreats behind a safety screen and throws the switch; there’s an x-ray buzz, then the plastic thing squashing your breast lifts by itself and you can breathe again.

Repeat for the other breast.

Then it’s time to do the laterals. The platform is tilted to a 45-degree angle and your breast squashed sideways onto it, again held flat by the plastic cover. Lather, rinse, repeat. Ow, ow, ow.

I was advised to do this every two years until further notice. The second or third time I had a mammogram, the clinic insisted on also doing a sonogram (ecografia), because the internal geography of my breasts is so difficult that a mammogram alone isn’t enough to spot potential trouble.

This revealed large cysts – very common, nothing to worry about, they show up as huge black bubbles on the sonogram. They are benign and totally unrelated with cancer.

During a trip to California in 1999 or so, I was going to sleep in my hotel one night when I suddenly noticed something sticking out of my breast – the inside of my upper arm brushed against it. It was about the size of a walnut, and seemed to have come out of nowhere. I lay awake much of the night, until it was late enough that I could call my doctor back in Milan.

“It’s probably one of your cysts that has suddenly enlarged,” she said soothingly (possible cause: I had just gone off the pill after trying it for 2-3 months and finding myself constantly depressed).

I was flying back to Milan within days, so the doctor told me to come immediately to her office when I got home, and she would give me a n emergency form entitling me to see a specialist within 48 hours. I duly did so, and had 100 cc’s of a nasty black fluid drained out of one of the cysts (through a large needle). Nothing to worry about.

You can’t keep a cyst down for long, however, and having these large sacs full of fluid in my breasts just makes me front-heavier. Within a few years I was trying to convince another doctor to drain them, but she refused, saying that would cause them to fill with hard stuff instead. The only solution short of surgery was to find better bras.

The cysts and I have been relatively at peace for a while. Until a couple of weeks ago, when my breasts began to ache, apparently with the strain of bearing increasingly large amounts of fluid. I wasn’t worried about this, but wondered if something could be done. Went to the family doctor on Wednesday. She gave me a Fascia A (A Category – urgent) prescription for a mammogram, which meant that they slipped me into the schedule the next morning at the hospital’s mammogram center.

The mammogram this time was, unsurprisingly, very painful – my breasts were already sore, after all. I whimpered, causing the technician to ask: “Does it really hurt that much?” I tried to concentrate on the many colorful posters hung on the walls around the room, presumably to distract suffering patients.

While waiting in the dressing cubicle, I overheard the doctor saying to another woman (an older one, I think): “There’s just something here under the nipple… can you come in Monday at 11 for a prelievo?” (“withdrawal” – in most medical contexts this refers to a blood sample, but in this case I assume she meant tissue). I wondered idly what medical adventure this woman might be embarking on, and thought of my mother-in-law, who had breast cancer six years ago.

When my x-rays were developed, the doctor – a reassuring lady with masses of curly black hair – called me in for my sonogram. She squirted a lot of chilly gel all over my breasts and slid the instrument around in it while staring intently at the TV screen.

“How long does it take to learn to understand what you’re seeing there?” I asked.

“Oh, you never stop learning!” she said cheerfully.

It was greek to me, but I could make out the cysts: big black gaps in the picture. They swam in and out of sight as the doctor moved the probe.

Then she went back to looking at the mammograms.

“I want you to do one more mammogram of this right side. The picture on this one is superimposed, it’s not clear enough.”

I wiped all the gel off with wads of the paper sheet, and returned to the x-ray room. (Did I mention that it was chilly in all these rooms and I had been topless for nearly an hour?)

This time I was in for special torture. An extra piece was added to the x-ray platform to raise it up, then instead of a big square piece of plastic, a small round one was squashed down on my breast (which hurt even more) and the technician drew a curve around it on my breast with a blue marker pen, I suppose to define the precise point of squashing.

Then I sat in the cubicle some more until the doctor called me back in.

“There’s an area here that’s…” she trailed off without ever finding the word. “It’s probably just the mastopatia [benign fibrocystic “pathology”], but… can you come in Tuesday for a prelievo?”

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Dental Trauma

At five months, human babies love the world and trust everybody in it. When I took her in for a routine pediatric checkup, my daughter Rossella smiled and gurgled and laughed, assuming that everyone in the world loved her, and nothing and no one would hurt her.

The checkup required that a little blood be drawn, from a finger prick. As I held Ross in my lap, she smiled cheerily at the nurse approaching with a trayful of blood-drawing equipment. “I feel so guilty,” sighed the nurse. “They’re always so trusting at this age.” Ross looked on interestedly as the nurse unwrapped a lancet, grasped her tiny forefinger, then rapidly poked it with that sharp piece of metal.

There was a moment of stunned silence. Ross’ face turned red and her eyes bulged with shock while the nurse hurriedly squeezed a drop of blood into a tube. Then Ross began to scream. These weren’t wails of pain or sorrow: she was giving voice to sheer outrage. She simply couldn’t believe that the world she had greeted with open arms had turned on her so suddenly and shockingly. Trust was shattered, and she had no intention of forgiving anybody anytime soon.

I cuddled her in my arms, telling her uselessly that the nurse hadn’t wanted to hurt her, that it was all for her own good, that everything was fine – and I reflected on the betrayed trust of children.

When I was age eight or so, I had an abcessed tooth. My mother took me to the dentist, who sat me in the big chair, examined me, and then went off in the corner to consult with my mother. Though they kept their voices low, I hear the word “extraction,” and asked worriedly, “You’re not going to do that now, are you?”

“No, of course not,” said the dentist soothingly, approaching me in the chair again. “Now just lie back and let me take a look.” The next thing I knew was searing pain as she wrenched that tooth out, followed by gouts of blood all over my favorite blouse. (I didn’t own much girly clothing, and was very fond of that frilly white blouse and the little red skirt that went with it – both ruined with bloodstains that day.)

My next memory is of being back at our house, standing in the garden, my jaw aching and my mouth full of blood-soaked wads of cotton. I was still in shock. I couldn’t believe that two grown-up women had done that to me, had deliberately lied and then hurt me when they said they weren’t going to.

My next dental experience was in Pittsburgh, where my dad (by then single-parenting me) couldn’t understand why I was so afraid that I would scream and tremble and cry as soon as the dentist got near me. I became so hysterical that he slapped me (the only time I can ever remember my dad hitting me), which naturally didn’t help. Anesthesia seemed the only solution, and that was what we did for years, every time, for every little cavity. I hated the sensation of going under (and the dentist’s repeated lie that the gas would smell sweet), hated waking up nauseous in a cold waiting room, to the sound of a local radio station. Once I awoke to an ad for “Andy Warhol’s Frankenstein” – not exactly soothing. But all of this was better than facing the dentist.

Although I gave up the anesthesia years ago, I still tense up in doctors’ and dentists’ offices – places of concentrated pain, as far as I’m concerned.

Tomorrow I will accompany Ross to have her first wisdom tooth out. She’s not a bit afraid. Though she had to start seeing dentists early in life, I was very, very careful to ensure that nothing was ever done to her without her knowledge and consent, and we were fortunate to find a dentist with staff whose patience and kindness were at least equal to my own. This meant a lot of visits in which nothing at all was accomplished on the dental front, but Ross grew to trust everybody so much that she eventually let them do everything they needed to, even the painful things, without fuss or fear. For a while she even aspired to be a dentist herself!

So she’s not worried about tomorrow. Nor should I be: our dentist here in Lecco is a family friend and absolutely competent. But, still, I can’t help my stomach clenching a little. Some childhood experiences you just never quite get over.

The Land of Illness

Another “country beginning with i” which is unfortunately very familiar to me is Illness. I have spent a lot of my life being ill.

Perhaps the earliest memory I have (of any kind) is of green bathroom tiles, and myself screaming. I had a high fever, so my parents thrust me into an ice-cold shower. An icewater bath was what you were supposed to do when small children had very high fevers, to get the body temperature down and avoid convulsions and brain damage (I don’t know if this is still medical wisdom today – Ross never had a fever that high).

Continue reading The Land of Illness