Category Archives: bio

Death by Waiting

Thanks to those who have written words of encouragement and kept me in your thoughts and prayers. Yes, even as an atheist I can appreciate prayers – if you care enough to intercede with your god for me, I take it as a sign of affection, and affection never hurts. Besides, I have so many different denominations praying for me that one of them’s bound to take, right? <wry grin>

I also had a bunch of phone calls yesterday wanting to know the news. Unfortunately, there hasn’t been any yet. Some people have said this may be a good sign: if there was bad news, the hospital would be in more of a hurry to inform me about it!

All this helps, but basically I’m going through hell. I cope better with unhappy certainties – god knows I’ve had enough practice at that – than I deal with any kind of uncertainty. I’ve slept very poorly for a week (staying at a noisy campground at the beach last weekend didn’t help), and there aren’t enough distractions in the world to keep my mind off this. (Though Ross is certainly providing a full repertoire of teenage moments – I begin to suspect she’s trying to make me glad that she’s going away to boarding school!)

The fear and anxiety I’m experiencing are very normal – even the American Cancer Society says so. I now know that a number of my friends and relatives have already been here and done this. So why didn’t I hear about it before? It seems that people have different reactions: some keep it to themselves; some share, but only with their closest. And I suspect that, when the results come back negative, many feel a bit foolish for having put themselves through so much misery: “What right do I have to complain? I’m one of the lucky ones: turns out I don’t have cancer.” And they put it out of their minds until the next time.

Make no mistake, there will be a next time – after all, I have difficult breasts. And I have heard from and about other women who have gone through this multiple times for various reasons. There’s got to be some way to make this waiting period less horrible for all of us.

update at 10:30 am: Finally got hold of the doctor (“But she called you yesterday!” – oh?) – all is well, nothing to worry about.

Difficult Breasts

I had my first mammogram about ten years ago, around age 35. I was surprised when the gynecologist I was seeing suggested it; I thought routine mammogram screening didn’t start til age 40 or 45. He said: Lei ha un seno difficile – “You have difficult breasts.” By which he meant that they were naturally lumpy (fibrocystic), making it hard to tell by palpation whether there was anything suspicious in there or not.

So I went for my first mammogram at one of Milan’s big hospitals. I stood a torso nudo (stripped to the waist), staring round-eyed at the machine. I’d been told mammograms were (at best) uncomfortable, and I didn’t know what to expect.

The technician, seeing my expression, asked: E’ la prima volta? (“Is it your first time?”). I nodded. She kept up a steady stream of chatter, to which I replied in monosyllables until she finally burst out: “I’m trying to distract you!”

I appreciated the effort, but…

So, for those who have yet to experience it (or never will), here’s how a mammogram goes:

You stand in front of the machine and the technician raises the platform (about a foot square) to a height just slightly uncomfortable to fit under your breast. You arrange your arm around the corner of the platform, and hold onto a handle at the back of the machine – that keeps your arm stretched out of the way. If the corner digs into your armpit, you know you’re doing it right.

The technician lifts the breast onto the platform and pulls it out to an extent you would not have imagined your breast could stretch. Then she lowers a flat, clear plastic cover that squashes it down to a minimum possible thickness (in my case, about two centimeters). This is indeed uncomfortable, verging on painful, depending on how sensitive your breasts are (which, in my case, depends partly on the time of month – never schedule a mammogram just before your period is due).

The technician retreats behind a safety screen and throws the switch; there’s an x-ray buzz, then the plastic thing squashing your breast lifts by itself and you can breathe again.

Repeat for the other breast.

Then it’s time to do the laterals. The platform is tilted to a 45-degree angle and your breast squashed sideways onto it, again held flat by the plastic cover. Lather, rinse, repeat. Ow, ow, ow.

I was advised to do this every two years until further notice. The second or third time I had a mammogram, the clinic insisted on also doing a sonogram (ecografia), because the internal geography of my breasts is so difficult that a mammogram alone isn’t enough to spot potential trouble.

This revealed large cysts – very common, nothing to worry about, they show up as huge black bubbles on the sonogram. They are benign and totally unrelated with cancer.

During a trip to California in 1999 or so, I was going to sleep in my hotel one night when I suddenly noticed something sticking out of my breast – the inside of my upper arm brushed against it. It was about the size of a walnut, and seemed to have come out of nowhere. I lay awake much of the night, until it was late enough that I could call my doctor back in Milan.

“It’s probably one of your cysts that has suddenly enlarged,” she said soothingly (possible cause: I had just gone off the pill after trying it for 2-3 months and finding myself constantly depressed).

I was flying back to Milan within days, so the doctor told me to come immediately to her office when I got home, and she would give me a n emergency form entitling me to see a specialist within 48 hours. I duly did so, and had 100 cc’s of a nasty black fluid drained out of one of the cysts (through a large needle). Nothing to worry about.

You can’t keep a cyst down for long, however, and having these large sacs full of fluid in my breasts just makes me front-heavier. Within a few years I was trying to convince another doctor to drain them, but she refused, saying that would cause them to fill with hard stuff instead. The only solution short of surgery was to find better bras.

The cysts and I have been relatively at peace for a while. Until a couple of weeks ago, when my breasts began to ache, apparently with the strain of bearing increasingly large amounts of fluid. I wasn’t worried about this, but wondered if something could be done. Went to the family doctor on Wednesday. She gave me a Fascia A (A Category – urgent) prescription for a mammogram, which meant that they slipped me into the schedule the next morning at the hospital’s mammogram center.

The mammogram this time was, unsurprisingly, very painful – my breasts were already sore, after all. I whimpered, causing the technician to ask: “Does it really hurt that much?” I tried to concentrate on the many colorful posters hung on the walls around the room, presumably to distract suffering patients.

While waiting in the dressing cubicle, I overheard the doctor saying to another woman (an older one, I think): “There’s just something here under the nipple… can you come in Monday at 11 for a prelievo?” (“withdrawal” – in most medical contexts this refers to a blood sample, but in this case I assume she meant tissue). I wondered idly what medical adventure this woman might be embarking on, and thought of my mother-in-law, who had breast cancer six years ago.

When my x-rays were developed, the doctor – a reassuring lady with masses of curly black hair – called me in for my sonogram. She squirted a lot of chilly gel all over my breasts and slid the instrument around in it while staring intently at the TV screen.

“How long does it take to learn to understand what you’re seeing there?” I asked.

“Oh, you never stop learning!” she said cheerfully.

It was greek to me, but I could make out the cysts: big black gaps in the picture. They swam in and out of sight as the doctor moved the probe.

Then she went back to looking at the mammograms.

“I want you to do one more mammogram of this right side. The picture on this one is superimposed, it’s not clear enough.”

I wiped all the gel off with wads of the paper sheet, and returned to the x-ray room. (Did I mention that it was chilly in all these rooms and I had been topless for nearly an hour?)

This time I was in for special torture. An extra piece was added to the x-ray platform to raise it up, then instead of a big square piece of plastic, a small round one was squashed down on my breast (which hurt even more) and the technician drew a curve around it on my breast with a blue marker pen, I suppose to define the precise point of squashing.

Then I sat in the cubicle some more until the doctor called me back in.

“There’s an area here that’s…” she trailed off without ever finding the word. “It’s probably just the mastopatia [benign fibrocystic “pathology”], but… can you come in Tuesday for a prelievo?”

next

Ross Got Into Woodstock School

A week or so ago I ran across this on the blog of one of my new colleagues at Sun:

To A Daughter Leaving Home

When I taught you
at eight to ride
a bicycle, loping along
beside you
as you wobbled away
on two round wheels,
my own mouth rounding
in surprise when you pulled
ahead down the curved
path of the park,
I kept waiting
for the thud
of your crash as I
sprinted to catch up,
while you grew
smaller, more breakable
with distance,
pumping, pumping
for your life, screaming
with laughter,
the hair flapping
behind you like a
handkerchief waving
goodbye.

Linda Pastan

…in other words: Ross will be attending Woodstock School in India next year.

I’m so happy I’m in shock. And, at the same time… I will miss her to the marrow of my bones. Wish us all luck.

Light at the End of the Tunnel

They say it’s always darkest before the dawn. I’ve just been through a dark period, but… here comes the sun! (In more ways than one, as will shortly become clear.)

I’ve been stressed and depressed since well before Christmas. Money (lack of) was becoming a problem. is a privately-financed start-up, and my salary there is low – working for so little has been my investment in the company, at my personal risk: there are no guarantees that what we’re doing will fly and, if it doesn’t, I will have practically thrown away all these years (financially – experience, of course, is always valuable).

I don’t care about being wealthy by anyone else’s standards. Thanks to my husband and his family, I have a very nice roof over my head. But I don’t like feeling that I’m not pulling my financial weight in the family (though we have the basics covered, my salary is needed). Worse, feeling that I’m losing my financial independence eats away at me.

Furthermore, my daughter wants to go away to school next year, to Woodstock, my alma mater – which has become a great deal more expensive since I attended it: $16,000 for tuition and boarding, plus airfares, a new laptop, and other sundries that a teenager abroad will need. This adds up to approximately my annual salary at TVBLOB. <wince>

So, I have to somehow at least double my current salary. I’m not in a hurry to leave TVBLOB: although, after four years, start-up mode is getting very old, the project is still absolutely fascinating and potentially world-changing. That, plus colleagues whom I like and respect very much, is hard to walk away from.

But, financially, I wasn’t sure I had any other option. I started looking around for other full-time jobs in high tech in Italy (Google? hmm), but – am I actually employable by any “normal” Italian company? I have no personal experience to go on, but I have heard that most Italian companies are more gerontocracies than meritocracies (and chauvinist, to boot).

Job ads in the Italian papers specify that they want someone young (yes, this is legal in Italy), so they can pay them miserably and keep them low on the totem pole. Many entry-level jobs across all industries are being done by low- or un-paid interns with the excuse: “you can afford to work for us just for the experience – you live at home with your parents anyway.”

I fear that a middle-aged foreign woman who’s inclined to speak her mind and wants to be paid what she’s worth is not likely to do well in such a context. The crowd I saw at Cisco Expo the other day confirmed my (possibly mistaken) prejudice that even high-tech companies in Italy tend to favor hierarchy and conformity – I would love to be wrong about this, but am I? I don’t want to find out the hard way.

Where else to look for work, and what kind of work? There’s always the small stuff, like translation, but globalization has depressed prices in that arena as well – most companies are not willing to pay fairly for a really good translation by someone who actually knows how to write in English. I put in a bid here and there, with no immediate result.

Because I have a director title at TVBLOB, I felt uncomfortable at the idea of explicitly advertising that I was seeking additional work. So I brushed up my resumé, trolled LinkedIn for connections and recommendations, and quietly told a few friends that I was in the market.

This has brought results far greater and faster than I ever hoped for. Next Tuesday I’m flying to Colorado to start part-time, freelance work (one quarter budgeted so far) with Sun Microsystems, as a web producer for one section of their vast online empire, among other tasks. After this initial visit, I’ll be able to work from home (though I won’t mind travel as needed – I’m generally happy to go places and see people).

I’m slightly terrified. I know all about building and sustaining online communities, and writing, managing and editing web content – in fact, I was one of the pioneers in corporate online communication. But the subject matter of the Sun storage site I’ll be supervising is hardly an area of expertise for me.

On the other hand, I didn’t know anything about CD-ROMs when I set out to write a book on them: I am very good at learning what I need to know (and enjoying doing so), when I need to know it. And there’s more than one former colleague in the group I’ll be working with – a bonus to the whole situation. It won’t be easy but, if it was, I’d get bored!

I’ll keep my TVBLOB job, four days a week instead of five (in lieu of the raise that they can’t afford to give me right now, the lack of which started all this), so I have the remaining hours in the week to work for Sun, maintain my site, and, oh, yes, have a personal life from time to time. I’m heading into a very busy period now, but I’m happier than I have been in months. Turns out there was Sunlight at the end of the tunnel.

Coming Out (to me)

Dec 27, 2006 – revised and expanded Jan 12, 2008

I grew up in a household without homophobia: one of my dad’s childhood friends was gay (and had known he was since age seven), a fact which never bothered Dad, who had other gay and lesbian friends in high school and college. No one ever told me otherwise, so, if I thought about it at all, I assumed that being gay was simply an aspect of a person, no more surprising or shocking than their race, religion, or native language.

I didn’t actually have much exposure – knowingly – to gay people until I got to college. Woodstock School in India in my day was tolerant of every other aspect of humanity except homosexuality, but its tacit intolerance of that was based more on ignorance than revulsion. In India, it was customary for men to walk down the street arm in arm or hand in hand with men, and women with women, while it was forbidden for men and women to have physical contact in public. This aspect of Indian culture was cause for some imported discomfort among Woodstock school boys (many of them American), so our public displays of affection were rigorously heterosexual – and those were forbidden by school rules, out of respect for Indian (and Christian missionary) culture.

So, although there were gay people at Woodstock when I was there, at the time I was neither aware of them nor sensitive to the issues of gayness. Some of those gay people were not themselves aware of it then – not surprising, in that environment.

I therefore arrived at college in the US with complete tolerance for, matched by near-complete ignorance of, American gay culture. (I loved “The Rocky Horror Picture Show,” which is in some sense a celebration of sexuality in all its forms, but too camp to be a useful guide to average gay comportment!)

I don’t remember particularly noticing any gay people around me in my first year or two of college (except at that Joan Armatrading concert in Santa Cruz). Then I got a crush on a guy who, though happy to spend time in my company, was oddly elusive, and always talking about his sisters – I grew confused as to how many sisters he had! He didn’t respond to my low-key, clumsy attempts at flirtation, but I was used to that – I wasn’t any good at flirting, and guys tended to either not notice at all, or run away screaming.

Eventually he came out to me, which resolved my increasing confusion, though I don’t now remember what specifically was said. We remained good friends, and I had my first experiences of open gay culture – most memorably, a disco party at which all the men and all the (straight) women threw themselves enthusiastically onto the dance floor for “It’s Raining Men”.

Sometime during the 1990s, during one of my frequent US trips, a Woodstock schoolmate took the unprecedented – and for her very scary – step of coming out to me. Or, at least, she tried to. She came to Boston to visit me from Northampton, MA, a town which I now know is reputed to be “the lesbian capital of America.” I didn’t know that then, and knew even less about lesbians than I did about gay men. My poor friend dropped any number of hints, and must have begun to wonder if I was being wilfully ignorant.

Finally she said: “I bought a pickup truck. I felt it would make a statement.”

I stared at her blankly. “A statement of what? That you move a lot?” (Having to frequently pack up one’s household to move was the only reason I could think of to own a truck.)

She almost gave up at that point. It wasn’t until she was on the step of the train, about to leave to return to Northampton, that she blurted out: “I wanted to tell you: I’m lesbian.”

“Uh, okay,” I answered, or something similarly lame. And the train pulled out. I felt terrible that I hadn’t understood her in time to have a real conversation about it, but I certainly wasn’t perturbed by the fact in itself, and we had plenty of later opportunities to talk about it.

Some years later, leaving California after a business trip, I used a phone in the business class lounge at the airport to have a long conversation with her about the wisdom or otherwise of coming out to our schoolmates. (I was in favor.) When I finally hung up the phone, a man sitting nearby gave me a huge smile. I supposed he was gay and liked what he had heard me saying.

My next new gay friend, years later, was Gianluca, a colleague in California. I was initially attracted to him, which I should have taken as a signal: somehow, most of the men for whom I feel more than a momentary attraction turn out to be gay. Perhaps it’s a marriage-saving reflex: I’m rarely attracted to any man who might actually be a threat to my husband.

It took some time for me to figure out that Gianluca was gay, and even longer for him to come out to me. Once we went to see some art film, and there was a trailer for a foreign movie about women’s sexuality. “Oh, I want to see that,” I exclaimed. Gianluca seemed completely uninterested.

Instead, he wanted to see “Jeffrey,” a film about a gay man. I figured that, while a red-blooded heterosexual man might reluctantly go along with someone else’s suggestion to see a gay film (as my college boyfriend had), he was not likely to propose it himself.

So we went to see it, and both laughed our asses off (it’s a cute movie, and was ground-breaking at the time). As we sat in the emptying theater afterwards, an obviously gay couple came up to chat with Gianluca. “Well,” I thought to myself, “I may not be sure he’s gay – but they are!”

It was that same evening or soon after that he finally invited me to see his apartment. As he threw open the door he said, “Now you’re going to see a whole new side of me!” The art posters of nude men on the walls came as no surprise whatsoever. So Gianluca officially came out to me, and we had a long talk about that.

Gianluca had led a sheltered childhood, and as a child was confused about the feelings he felt. He told me that at age 14 he finally learned that homosexuality existed, while watching a TV program on AIDS. So he simultaneously realized that he was gay, and became convinced that he was condemned to die.

It was heartbreaking to me to think of a child living with such enormous fears, all alone, feeling unable to talk to anybody about it. I don’t want that to happen to any other teenager if I can do anything to help.

The long dance around Gianluca’s finally coming out to me also made me understand just how fraught this process can be. I could feel vaguely insulted to think that anyone wouldn’t instantly know that I am homophobia-free. On the other hand, it seems utterly absurd that, in modern society, gay people feel the need to be so very careful. Oh, I totally understand their reasons – I just think it’s crazy that society forces that caution upon them. I have a lifelong habit of telling people exactly who I am and what I think. I had never realized what a luxury that is. I cannot imagine always having to weigh what you’re going to say to whom – and most of the time concluding that it’s probably safer to hide a large part of who you are from most people. This, too, is terribly sad.

I would like to think that everyone I care about feels free to be absolutely who they really are with me. So I have no patience with waiting to get to “do I know you well enough to tell you I’m gay?” – and my gaydar is now developed enough that I’ve usually figured it out long before we get there. I give the other party every possible opening (in tête-à-tête situations, to protect their privacy), dropping heavy hints to let them know that “If you were gay, it’d be okay.”

My reward is that moment of relaxation, a visible unclenching, when the person realizes that I’m not going to freak out, that I accept and like them as they are. And then a true friendship can begin.